Monday, March 30, 2009

Some days you are the windshield

but lately, I have been the bug.

It has been some time since I have written, though very little, really, has been going on. I will try and recap so bear with me.

Had my second round of chemo the 18th to the 20th without a seizure. BUT, with similar results - tired and cold, and some would say irritable. Cannot argue with that.

That weekend Colin and Mandy, and kids came for a short visit. As well, Heidi's sister Kris stopped in. She was on her "way" to Chicago - from Raleigh - for a conference. Had I not been Mr. Cranky it would have better, but it was still a treat to have everyone visit. Just the wrong weekend for me.

So, pretty much been sound asleep since then. I wake up tired, generally with a headache, and tire myself by going downstairs to have some coffee. It sucks. Anything requiring more than 5 minutes or so of attention is pretty difficult. Not for lack of desire - it's a body thing. It doesn't want to do it.

Met with the neurologist this afternoon - finally. I think he is the only guy in town. It has been since the 2nd when I called for an appointment. Given some of my smart ass comments, and his regular battery of tests, at this moment I am doing okay. He scheduled an EEG on the 20th - I am guessing for a benchmark of my brain's activity. Yes folks, he insists I really do have a brain. I sometimes wonder.

And next week, joy of all joys, my 3rd round of chemo. Also will be getting another CT scan to see if anything is working. I agree with Heidi. If I knew for a fact that any of this was working, I would probably feel better. In the interim I can only hope for the best and be positive. Not always an easy task.

Forgot to mention the seborrhea - brown skin patches on my head. Typical I am told of the radiation treatment. Disconcerting at first until I found out it was "OK".

I really do not have much else to share at the moment. I have said it before - I've been told the worse I feel, the better things are going. Treatment wise. If that is the case, I should be cured here pretty soon. And just about everyone I see tells me I don't look sick. I appreciate hearing that, and really hope they are correct. I would not wish this on my worst enemy. It is grueling, tedious, frustrating...

Till we meet again....

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